What Is Mal de Debarquement Syndrome? (2024)

When you head out to sea on a cruise ship, your brain and body have to get used to the constant motion. It’s called “getting your sea legs,” and it keeps you from crashing into a wall every time the ship bobs up or down.

When you get back on shore, you need time to get your land legs back. That usually happens within a few minutes or hours, but it can take up to 2 days. With mal de debarquement syndrome, though, you can’t shake the feeling that you’re still on the boat. That’s French for “sickness of disembarkment.” You feel like you’re rocking or swaying even though you’re not.

It can happen to anyone, but it’s much more common in women ages 30 to 60. It’s not clear if hormones play a role.

People who get migraines may be more likely to get it, too, but doctors aren’t sure how the two conditions are linked.

What Are the Symptoms?

Mainly, you feel like you’re rocking, swaying, or bobbing when there’s no reason for it. You might feel unsteady and even stagger a bit.

Other symptoms include:

Your symptoms may go away when you ride in a car or train, but they’ll come back when you stop moving. And they can get worse with:

  • Being in a closed-in space
  • Fast movement
  • Flickering lights
  • Stress
  • Tiredness
  • Trying to be still, like when you’re going to sleep
  • Intense visual activity, like playing video games

What Causes It?

It happens most often after you’ve been out on the ocean, but riding in planes, trains, and cars can lead to it, too. It’s even been caused by water beds, elevators, walking on docks, and using virtual reality.

While almost any kind of motion can cause it, doctors don’t know what’s really behind it. In most cases, you get it after a longer trip. But there’s no tie between the length of your trip and how bad the symptoms are or how long they last.

How Will My Doctor Test for It?

It’s a rare condition, so it may take a few visits to figure it out. Your doctor probably will want to rule out other causes for your symptoms with things like:

  • Blood tests
  • A hearing exam
  • Imaging scans of your brain
  • An exam that makes sure your nervous system is working the way it should
  • An exam to test your vestibular system, which keeps you balanced and steady

If you’ve had the symptoms for more than a month and the tests don’t turn up any reason for them, your doctor may tell you that you have mal de debarquement syndrome.

How Is It Treated?

It’s a hard condition to treat -- no one thing works every time. It often goes away on its own within a year. That’s more common the younger you are.

A few things your doctor might recommend include:

  • Brain stimulation therapy. This uses electrical signals to change how your brain works. It’s a newer therapy but has shown promise in recent studies.
  • Medicine. There’s no drug made just for mal de debarquement syndrome, but certain medications used to treat things like depression, anxiety, or insomnia may help some people. Drugs used for motion sickness won’t help.
  • Vestibular rehabilitation. Your doctor can show you special exercises to help you with steadiness and balance.
  • Taking care of yourself. Exercise, managing stress, and getting rest may give you some relief.

Can You Prevent It?

There’s no sure way. If you’ve had mal de debarquement syndrome before, it’s probably best to stay away from the type of motion that brought it on. If you can’t do that, check with your doctor to see if a medication might work for you.

What Is Mal de Debarquement Syndrome? (2024)

FAQs

What Is Mal de Debarquement Syndrome? ›

MAL DE DEBARQUEMENT (MDD), literally "sickness of disembarkment," refers to inappropriate sensations of movement after exposure to motion. The syndrome typically follows a sea voyage, but similar sensations have been described following extended train travel, space flight,1 and experience within a slowly rotating room.

What is mal de debarquement syndrome? ›

Mal de débarquement syndrome (MdDS) is a rare vestibular disorder that makes you feel like you're moving even when you're not. MdDS is common after traveling, especially by boat. In most cases, MdDS symptoms go away within 24 hours. But they can linger for months or even years, in some instances.

How do you fix mal de debarquement syndrome? ›

In terms of treatment, there is no first-line treatment recommendation for MdDS. New potential treatments such as repetitive transcranial magnetic stimulation, certain vestibular therapy exercises, or pharmacotherapy may prove useful, but more trials are needed before any strong conclusions can be made.

Is mal de debarquement syndrome a disability? ›

Disability Benefits for Mal de Debarquement

As with most types of disabilities, showing that you have a long-term history with the syndrome and that it hasn't or is unlikely to get better within the next 12 months is crucial in developing a SSA claim.

What makes MdDS worse? ›

Your symptoms may go away when you ride in a car or train, but they'll come back when you stop moving. And they can get worse with: Being in a closed-in space. Fast movement.

What does mal de debarquement feel like? ›

What are the symptoms of MdDS? The symptoms of mal de debarquement include the sensation of rocking, bobbing or swaying; along with unsteadiness, anxiety and loss of self confidence. The symptoms often increase when the person is trying to remain motionless for example attempting to fall asleep or standing still.

Is MdDS the same as vertigo? ›

The International Classification of Vestibular Disorders defined vertigo as the “sensation of self-motion when no self-motion is occurring or the sensation of distorted self-motion during an otherwise normal head movement.” In this broad sense, the experience of MdDS is a form of vertigo (13).

Is MdDS a neurological disorder? ›

Mal de Debarquement Syndrome (MdDS) is a neurological disorder, typically characterized by the perception of self-motion that persists for more than 1 month from an onset, which in most cases occurs after disembarkation from a vehicle (e.g., boat, cruise, train, plane).

Is walking good for MdDS? ›

MdDS is different for each patient, so walking on beach is OK for some but not for others. Avoid virtual reality and driving simulator experiences. If you are still experiencing symptoms, it is recommended not to walk on a treadmill and to use an elliptical machine.

Can MdDS go away? ›

For the vast majority of patients, MdDS does go away. Most cases of MdDS improves and resolves within 12 months. However, this can vary with factors such as the presence of anxiety, whether you are participating in vestibular physiotherapy, and the intensity of your symptoms.

Can you drive with MdDS? ›

MdDS is usually seen in women in their forties [5] and patients usually describe a constant sensation of rocking, swaying, or bobbing while walking and while lying still [6-7]. Interestingly, these symptoms temporarily subside when patients are re-exposed to passive motion (eg. driving a car) [8-9].

Can magnesium help MdDS? ›

Magnesium glycinate and riboflavin were initi- ated to reduce MdDS symptom exacerbation by underlying migraines. These supplements were discontinued after 1 month due to worsening of motion sensation.

How do I reset my vestibular system? ›

In a sitting position, bend your head down to look at the floor then up to look at the ceiling.
  1. Lead your head with your eyes focusing on the floor and the ceiling.
  2. Repeat this 10 times. Stop and wait for symptoms to resolve, about 30 seconds.
  3. Repeat entire process 2 more times.

Does MdDS affect vision? ›

This study surveyed people with MdDS and individuals from the general population about visual health and found that the MdDS group reported a higher frequency of visual dysfunction symptoms. Compared with motion-triggered patients, non-motion patients reported unique visual symptoms.

How long does mal de debarquement syndrome last? ›

For the vast majority of patients, MdDS does go away. Most cases of MdDS improves and resolves within 12 months. However, this can vary with factors such as the presence of anxiety, whether you are participating in vestibular physiotherapy, and the intensity of your symptoms.

What is the most common symptom of vestibular dysfunction? ›

Dizziness and vertigo are symptoms of a vestibular balance disorder. Balance disorders can strike at any age, but are most common as you get older.

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